tag:blogger.com,1999:blog-326012714687495701.post2664858569913626318..comments2023-06-03T06:10:50.351-07:00Comments on Annie Sullivan: Rare Disease Week--February 25-March 1st, 2013Jean Sullivanhttp://www.blogger.com/profile/12237321202399962876noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-326012714687495701.post-55937183224547156312013-02-27T07:37:37.369-08:002013-02-27T07:37:37.369-08:00Thanks for continuing to be a crusader for all chi...Thanks for continuing to be a crusader for all children affected with AI and specifically Addison's Disease. Two of my granddaughters, Olivia and Kinsley, have Addison's. Olivia had a life-threatening crisis in January 2007 when she was 15 months old (same day as your Annie's)and was not diagnosed until she was 3 1/2. During those two years, she was hospitalized many times and Addison's was not diagnosed. Her little sister had a near death crisis when she was only 7 months old. Luckily, she was being treated in the ER when she coded and they resusitated her without permanent damage. Both girls will take hydrocortisone for the rest of their lives. My daughter carries the solucortef and syringes in case of crisis. We have spoken to local fire departments about AI and the need for 1st responders to carry solucortef. We shared Annnie's story and brought pink cupcakes to the fire station last year.<br />Thank you for all you do to raise awareness. Thank you Annie for being a beautiful guardian angel!<br />Gratefully, MemaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-326012714687495701.post-71218751853075314812013-02-20T20:02:36.162-08:002013-02-20T20:02:36.162-08:00How wonderful!
Praying for you always,
Terri W...How wonderful! <br /><br />Praying for you always,<br /><br />Terri WAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-326012714687495701.post-65695474779723905702013-02-19T18:19:47.110-08:002013-02-19T18:19:47.110-08:00Prayers are already in flight - have an absolutely...Prayers are already in flight - have an absolutely GOD-AWESOME week!!aunt rebeccanoreply@blogger.comtag:blogger.com,1999:blog-326012714687495701.post-43897720263729210882013-02-19T17:22:21.282-08:002013-02-19T17:22:21.282-08:00Thanks, Kathy!Thanks, Kathy!Jeanhttp://www.annaleesullivan.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-326012714687495701.post-1792414230720581622013-02-19T17:15:45.960-08:002013-02-19T17:15:45.960-08:00I will pray for this trip and for you Jean!I will pray for this trip and for you Jean!Kathy Dayhttps://www.blogger.com/profile/00763434381882245334noreply@blogger.com