Friday, September 7, 2007

And one more thing...

Today's visit with the neurologist went very well. He spent a lot of time with us reviewing what the best options are for controlling the seizures without the side effect of cognitive slowing. The stuff she's on now has slowed her cognitive recovery, so like I mentioned in a previous blog, we're changing it. All this takes time, but we're already seeing some improvement in her communication. She still is having about four seizures a day though--"little" drop seizures that are only a second or two long. Tonight, however, she also had a weird seizure where her eyes rolled back into her head for a second. So, please pray that we don't start going in the wrong direction.

On a more positive note, the doctor mentioned that when he remembers what her brain MRI looked like in January, he is surprised at how well she's doing. God has knit her brain back together in so many ways--and I am manic in thanking Him for what He's done, while begging Him for more. I don't want to sound ungrateful!

And one more thing, could I ask you to pray that she sleep through the night? One of the side effects of the new med is that it is a stimulant. I think I already wrote this. Feels like Groundhog Day. But it keeps her up all night. And me too--one of the reasons I'm repeating repeating myself. The doctor suggested that we adjust the time we give it to her so that it's not so close to bedtime, so we'll try that.


Jean

I will both lie down in peace, and sleep;
For You alone, O LORD, make me dwell in safety. Psalm 4:8

13 comments:

Anonymous said...

Jean,

So glad to hear the good news...will pray for balance in your days...so much going on.....good news/not so good news....may God bless all of you as He takes you on this journey....strength, courage, peace, rest, HEALING!

Love,
Marilyn

Anonymous said...

I am so happy for the routine of school for you all. It can be so good for Annie and so hard for us parents to create and keep consistant :) I am familiar with the medication struggles myself and will pray for peace for you all.
I appreciate you being so open to share your journey with others. I know it is encouraging for us all. I also think its important for us to not become so tunnel visioned in our own lives. I will continue to pray for you all.

Jennifer Evertz

Gretchen said...

You couldn't sound ungrateful if you tried, Jean; not about this anyway. So glad for the good news from the neurologist. Day by day, right? God HAS knit her brain together in so many ways. I'm grateful for each one, and I'm sure He's not done with her, yet!

Jesus, I thank You for the miracles this family has experienced, and I come to the throne to ask for more. Thank You for Your daily new mercies. Thank You for answering prayers. I so want Annie (and JEan) to sleep. God, please bless this family abundantly. In Jesus' name. Amen

Annie Sullivan said...

Annie did have a really good day today. Only 2 head-drop seizures, and no eye-rolls.:) She was very alert, vocal, and lots of smiles. Thank you guys, so much, for your prayers--God is answering--and I really felt them today.

:)Jean

aunt rebecca said...

He who watches Israel neither slumbers nor sleeps,
slumbers nor sleeps,
slumbers nor sleeps,
He who watches Israel neither slumbers nor sleeps,
slumbers nor sleeps.

May we all rest in knowing that God is awake.

Amen to all who travel before me in the blog...it is very thoughtful of you to keep us up to date on the details, Jean.

May the sweet sleep of the saved be upon the Sullivan family tonight - wherever they may be. Amen

Anonymous said...

Jean, I am so thrilled to hear of Annie's progress... and no you certainly do NOT sound ungrateful! We are ALL praying for Annie's full recovery even as we praise Him for how far He has brought her! You are doing SUPER and I am sure there are many many struggles for you that we never know about. BUT I am SO glad you share those which you can and allow us all to be more of a part of this with you and walk with you through our love and prayers!

Sue Powell

Tracey said...

Lord,
You have told us
how to pray: fervently, consistently, shamelessly
when to pray: always and anytime
where to pray: where we are, anywhere
for what to pray: anything and everything

Lord,
The persistent widow did not let the unjust judge off the hook
she prayed at him until he relented.
And Lord, we do so now.

How?
Shamelessly, fervently, consistently
When?
Now, always,
every waking hour
and through our dreams.

Where?
Where we are, no matter where that may be
anywhere
and everywhere we find ourselves.

For what?
For Annie.
For her healing.
For clear sight, and the messages the eyes bring to the brain
For clear hearing, and familiar sounds in memory
For speech, and the words which struggle behind silent lips
For kisses and smiles, and the intensity of love that goes with them.
For complete repair of mental and physical function.

We are fervent, Lord, consistently.
We are shameless,
down on our knees we come to you again
and again
and again
persistent widows.

We pray always
any time, all the time.
We repeat ourselves in every breath.

We pray here, Lord
and there
and everywhere.
We are here, Lord
Do you hear us?
Can you see us?
Won't you answer our prayers?

And we pray for everything, Lord.
Simply, we pray
that You would heal our Annie.
Miraculous to us
a mere breath for You.

We will not let You off the hook, Lord,
just as You have told us,
just as the persistent widow
did not let the unjust judge send her away.
We will badger you Lord
until You are embarrassed by it.
We will pray, Lord,
over
and over
and over
and over
for the same thing, Lord
until you choose to relent
not as the unjust judge did with the persistent widow
but as the just judge we know You to be
the just judge who promised
the just judge who can
the just judge,
we pray yet again, Lord,
who will.

In Jesus' name, Amen.

-T

Annie Sullivan said...

Caution: Kleenex needed!!

Thank you Tracey for your prayers. I so appreciate you (ALL) for bearing this burden with us.

Love, Jean

Gretchen said...

Yeah, what Tracey wrote. Me too. Me too. xxxooogretchen

Anonymous said...

Amen and Amen

Anonymous said...

Jean-

I (like everyone else) REALLY appreciate the updates. God is really working, isn't He?

Lord, thank You for Annie and thank You for Your love.

uncle jeff

Anonymous said...

I'm sorry that I haven't written for such a long time. My written words are not as eloquent as those that I read here on Annie's Blog. Thank you so much for your continued updates. I am sure that it is a form of therapy for you as you keep us abreast of Annie's days. Please know that the lack of my correspondence does not mean a lack of thoughts and prayers for Annie and the Sullivan Clan.

Love,

Janice Moore

Annie Sullivan said...

Janice--I know you're checking in and we can feel your prayers.:)

Love,

Jean