Friday, May 23, 2008


Annie used to say, "Mom, my name isn't Annie, it's Cinderellela!!" She loved to dress up in her Cinderella dress and pretend she was a fairy princess.

This evening, after putting Annie to bed, I was watching a Youtube video of Christian songwriter and singer, Steven Curtis Chapman and his 5 year old daughter, Maria. Many of you know that the singer's daughter was killed this week after a tragic car accident in the family's driveway. His newest song, "Cinderella," was inspired by his two youngest daughters, one of whom was Maria, and in it, he talks about how quickly children grow up and leave. We don't know how long our children are going to stay in our house, and we really don't know how long they're going to be here on earth. But how good it is when they put their trust in Jesus, that if their life here on earth is brief, we have that assurance that they are in heaven. Then those verses in 1 Corinthians resonate in our hearts:

So when this corruptible shall have put on incorruption, and this mortal shall have put on immortality, then shall be brought to pass the saying that is written, Death is swallowed up in victory.
O death, where is thy sting?
O grave, where is thy victory?
The sting of death is sin; and the strength of sin is the law. But thanks be to God, which giveth us the victory through our Lord Jesus Christ.
1 Corinthians 15:54-57

What a hope we have! A rock-solid assurance that this life is not the end!


PS. We're working on scheduling a Gastroenteralogy clinic consult...which may or may not help us figure this nausea/gagging/vomiting out. She's had only about 2 seizures a day, and continues to laugh more, and, unfortunately, cry more. More awareness means more frustration. I saw a look in her eyes last night that was so frustrated--like, "Mom, I want to TALK!!!!" But--it is progress.


Anonymous said...

Jean, it must be SO hard to see Annie wanting to much to talk to you and she can't. On the other hand... wow what a praise that she has come so far and is expressing the emotion and desire! I read this when it was posted; just never came back and responded.

Yes... hearbreaking about Maria Chapman. I saw the most adorable youtube video of her and her Daddy.

Sue Powell

Gretchen said...

I know we hate it, but frustration is good. She's getting it, Jean. She is. Cry by cry and giggle by giggle.

I'll pray that the G-E consult is helpful and that those gaggy times become the exception and not the rule. xxxooogretchen

Annie Sullivan said...

Thanks, Sue & Gretchen--and I know in my mind that Annie's frustration is a good sign--does that count for ME too?? Ha-ha.