Thursday, June 26, 2008

More better

How many seizures did I count today? Zero. Zip. Zilch. I didn't see ANY. Can you believe that? Annie has made steady progress since getting out of the hospital, and has gone from 4 seizures an hour to none. And when the seizures go away, she just seems so "there". Her eyes are so expressive, and her vocalizations are so intentional. I just hold my breath when these little windows of the old Annie peak through.

She is also drinking from her sippy cup again--which she wasn't doing when she was in the hospital--all the seizure meds made her droopy and unable to control her swallowing.

This afternoon, PT Janine came over and worked with Annie in the walker/gait trainer. Annie made some sit-stand moves in between her yelling, so we'll practice that in 5 minute increments for awhile--until she sees that she can maneuver the thing to get from point A to point B. Pray that she has motivation to move. Motivation and initiation are not her strong suit.

Tomorrow we go down another notch on the Ketogenic Diet. Again--appreciate your prayers that she not have any seizures as she makes this next adjustment.

I've saved the best for last: This past weekend while we were out at the store, I stopped her stroller and walked around a display, then came back in front of Annie. When she looked up and saw me there, she smiled and said, "Hi." Okay--that is the first time she has initiated a greeting in 18 months. Thank you, Lord!

Jean

Here we are
Here we are
Bandaged and bruised
Awaiting a cure
Here we are

Here You are
Here You are
Our beautiful King
Bringing relief
Here You are with us

"Remedy" by David Crowder

12 comments:

Anonymous said...

Thank you Lord, indeed!
Continuing love and prayers,
Terri W

aunt rebecca said...

Hi, Annie!

Anonymous said...

Hi to you Annie!! You continue to be a miracle everyday Miss Annie. I love you tons and can't wait to see you!

Thank you Jean for your updates. Of course all of us love to log on and get a glimpse of how Annie is doing and perhaps leave a comment or thought. What generally happens though, is that WE walk away encouraged by the Sullivan's steadfast faith and everyday trust in Jesus. Thank you!

Vickie

Anonymous said...

Well you would think by now I would be able to read an update such as this without bursting into tears of joy. Naaaaaaah... never happen! :) Yeah, what Vickie said. And yeah, Hi Annie!

Sue Powell

Anonymous said...

So Jean... tell us how you reacted when she said "hi." :)

Sue Powell

Annie Sullivan said...

Well, we have been practicing the word, but I've always been the one initiating it. So when I came around the corner and she said "Hi," you know, I just thought "Oh, how cute." THEN I thought--Hey, wait a minute--she hasn't done this in MONTHS!!! This is so appropriate, this is HER talking to ME. It was really cool.

:)

Anonymous said...

Annie,
The picture of mommie holding you on New Year's Eve is beautiful. You are beautiful little one. It is so good to hear about your accomplishments!!!

Have a great day!!
Su Hawley

uncle jeff said...

hi to YOU, Annie Bananie,,,

so good to hear of God's healing - little by little; step by step,,,

:)

Anonymous said...

Jean, thanks for sharing. Funny that it took a moment for it to soak in that she had just said "hi" to you! :) Bet THAT made your day!!! It made mine too actually.

Sue Powell

Gretchen said...

THIS.IS.SO.COOOOOOOLL!!!!!!!!!!!

Praise God. Yay Annie!

xxxooogretchen

aunt rebecca said...

Give to the winds your fears,
in hope be undismayed.
God hears your sighs and counts your tears.
God shall lift up your head.
Through waves and clouds and storms
He gently clears the way.
Wait for His time, so shall the night
soon end in joyous day.

Far, far above your thought
His counsel shall appear,
when fully He the work has wrought, that caused your needless fear.
Leave to His sovereign will
to choose and to command;
With wonder filled, you then shall own,
How wise, how strong His hand.

Paul Gerhardt, 1653
Translated by John Wesley, 1739.
Set to music by George J. Elvey, 1868.
Tune - Diademata, S.M.D.

Anonymous said...

Yay! Yay for Hi! I'm so happy to hear that - it made my week.

Love and kisses -

-Cousin Becky