A week or so ago I was feeling overwhelmed at all the stuff I needed to do to push Annie along, because she was on a wave of feeling good. That wave is gone. We're back to square one, or minus one, as she is struggling again with nausea and vomiting. Annie had multiple seizures today, and threw up 3 times.
I think we're going to have to wean down on the Banzel, which I think is causing the vomiting...and I'm not sure what we'll try next. Something, I'm sure. But it is the nature of Lennox-Gastaut seizures to elude easy solutions. We were hoping that this new drug, which specifically targets her type of seizures, would work. It's discouraging that the side effect of nausea/vomiting is so severe in Annie that we may need to discontinue the drug.
Chronic illness is the pits.
Jean
Trust in the Lord with all your heart, and lean not on your own understanding; in all your ways acknowledge Him, and He shall direct your paths. Proverbs 3:5-6
5 comments:
I am so sorry. If I could make it all better for you, I would. I do love you and your whole family; and I do pray.
Love,
Terri W
Thanks so much Terri--prayers are what we need, because God is the only One with the answers!
Love,
Jean
That is so true, Jean. Our Father knows the answers and He knows what you are going through even better than you do. I hope you can rest in Him. I know you rest in Him; but I mean really rest in Him. From some of the really hard things that I have been through in my life I know that we mothers work so hard to do it all and we work at handling all the problems in a godly manner and doing so much so fast that we unintentionally and unknowingly lose sight of real reality......that we are human and God is God. You are truly one of the most, if not the most, amazing Christian (or any, for that matter) woman I have ever known. I love you so much. Please give yourself the measure of patience (that you give so generously to others). Cut yourself a break. It is up to God to heal her. He already gave her the best mother on the face of the planet. And the best family. These things have been on my heart for a couple of weeks. I realize that now is probably not the best time to try to communicate them, due to the increased vomiting and seizures........but I can see that you are physically and emotionally exhausted (and who wouldn't be?) And I realize this is not the best way to communicate.....but I don't want to call (I always worry about calling at the wrong moment) and I no longer have your personal e-mail address (my computer crashed big time a while back). Please forgive me if you think I might be being insensitive. I am trying to be exactly the opposite. I love you so much. Please rest. What can I do to help you rest? Or to help you in any way? Please feel free to call me any time. (Cell phone/we disconnected our land line)
Love,
Terri W
I hear you, Terri--and I appreciate your wisdom! I'll give you a call soon--after I take a nap!
Amen, Terri. And thank you God.
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