Thursday, January 10, 2008

Annie has had a stable, calm 2 weeks or so. I'm blue from holding my breath. No head drop seizures, no throwing up, no insomnia--I'm starting to wonder where they put my kid. The sleeping thing is really nice--I put her down around 8 PM, she lays down, and bam--lights out. Even if I hear her stir in the night, she rolls over and goes back to sleep, and stays asleep until 6 AM when we give her her morning medicine. Then she briefly looks at up at us, and goes back to sleep until 8 AM or so. Thank You, Lord!

Tomorrow we go down to Children's to talk to a dietician about the Ketogenic Diet. Assuming there are no contraindications, (impressive word, huh?), we should start it as soon as they have an opening on the schedule. Remember that the goal of the Ketogenic diet is to control her seizures without medicine, so that we can have an Annie without cognitively dulling side effects. And as I said in a previous post, just lowering her dose of Keppra and Zonegran a little in December has uncovered more smiling and alot more eye contact and awareness.

Meanwhile, the therapists from Rehab Without Walls are working with Annie through the month of January. Beth, the OT, brought a gait-trainer to help Annie practice standing. Something to pray about is for Annie to use her arms and hands more, because if she can use them to hold onto the gait-trainer, she can begin walking by herself. Her aversion to using her arms and hands has been a huge barrier to her physical recovery. Please pray that God heal those connections quickly.

As always, we are so thankful for all your prayers. Please keep persisting--more use of arms/hands, and that this diet work to help her walk, talk, laugh and sing. And again, if God wants to just be done with it and heal her suddenly, I'll take that!

Jean

And behold, a leper came and worshiped Him, saying, “Lord, if You are willing, You can make me clean.” Then Jesus put out His hand and touched him, saying, “I am willing; be cleansed.” Immediately his leprosy was cleansed. Matthew 8:2-3

7 comments:

uncle jeff said...

Thanks, God, for Your work in us. You're power is perfect and Your wisdom is a lot greater than ours - to say the least.

Thank you for my sister, for Annie, for Bill, for the boys, for Olivia, and for the blessings that You've showered on this family.

Thanks for loving us and never failing us. Thanks for each and every "coincidence" in our day-to-day lives that show us Your perfect plan for us.

Lord, pleasee heal Your daughter. Make her "clean" again.

Thank you,,,

Gretchen said...

Lord, thank You for this precious child. Thank You for our faith in Your power to heal and strengthen, to love and give grace. I pray that You would continue to lay healing hands on Annie. I pray specifically that You would help her use her hands and arms to help with mobility and overall movement. I thank You for the wonderful rest she's getting each night (not to mention a thanks for the rest for Bill and Jean!), and thank You Lord for those smiles. I pray that the Ketogenic diet would be in Your will and would, as Jean says, bring back Annie, but w/o the cognitive side effects. You are mighty and powerful, and we look to You to save, bring peace, and to heal. In Jesus' name. Amen. xxxooogretchen

Gretchen said...

On the 21st, I'm going to post a link to this site and a request for 24 hours of prayer again for Annie. Just wanted to give you a heads' up. :)

Annie Sullivan said...

Thanks, Gretchen. I REALLY appreciate prayers for her. And thanks for remembering her "anniversary." God--please hear us and heal Annie!!

Jean

Anonymous said...

It is super to hear about Annie's progress! And I am sure that getting some REST will be good for her and you too! I continue to pray!

Sue Powell

Anonymous said...

Praising God for the good news! Praying about the Ketogenic Diet.
Hoping Millie isn't contraindicated!
Love,
Terri W

Anonymous said...

Thanks Gretchen,
Please post the notice a few days before the 21st. There's a few folks who would be disappointed if they missed the date.

Uncle Dan