Thursday, October 14, 2010

Seizureless in Seattle

Last time I wrote on October 5th, Annie was into her 2nd week of cycling low with tons of seizure activity. It continued on until early this week--2 1/2 weeks for anyone who's counting--and today she actually had her first day of NO seizures. These last couple of weeks have been horrible and her seizures relentless--usually at least 8 a day--with lots of little ones mixed in. For her to be seizureless today borders on miraculous. Amazing. Thank You, Lord.

This is especially important now, because she is scheduled for intensive feeding therapy beginning in November, and continuing for at least two weeks, maybe three. This will be an adventure, and we will need your prayers every day!

It's interesting that today, her first day of no seizures, she was quite receptive to eating. I sat her down on the kitchen floor while I fixed her evening meds, and we were just visiting about the day, when I remembered that Nurse Patty had put some leftover snacks from lunchtime in her bag. Now, for the past couple of weeks, anytime anything has been offered to her, she has refused it. Probably because she has been so groggy and out of it. But today, as she was sitting in the kitchen, I offered her Cheetos, and she leaned forward, bit off a little bite, chewed it, and swallowed it. So, she seems to know when she can and can't handle food, and when she's alert, she doesn't seem to be near as averse to the idea of eating as she has been in the past. It really all seems to hinge on how she feels physically.

Anyway--it is an answer to prayer that she is doing so well now. Thank you for your prayers!

Jean

"Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God." 2 Corinthians 1:3-4


7 comments:

Dusty said...

Jean, has Annie been checked for hypoparathyroidism? The only way to rule it out is with IONIZED calcium and Parathyroid hormone PAIRED. Hypoparathyroid can cause seizures.

I'm sure you've ruled this out but I just wanted to mention it in case you hadn't.

:) Dusty

aunt rebecca said...

my verification word: WAALKE
Sounds like "WALK" to me.

Yeah!

Anyway, thank YOU, JESUS, for NO SEIZURES!!!!

And thank YOU, JESUS, for CHEETOS!

;-)

Love,

Jean said...

Dusty--I am going to talk to my doctor about the hypoparathyroidism. Seems to me that I looked that up for another reason at some point, and we ruled it out...but I don't know if we tested it with both ionized calcium & parathyroid hormone. Thanks for that input--and don't ever assume we've done anything--I think with all of her issues it may be something simple that we've overlooked that is the answer to a lot of problems.

Rebecca--she'll be walking a lot in between feeding therapies...maybe that'll be a "side benefit" to that adventure.

Marilyn said...

And, of course, any change in activity level could affect Annie's delicate balance.

Soldier on, Jean! And, thank you, Lord, for answered prayer!

"midgyro"! sounds like fun! :)

Anonymous said...

Seizureless in Seattle......now that rocks!! Swallowing in Bothell rocks, too!!! You haven't heard from me in a while; but I am continually watching and praying.

Love and prayers,

Terri W

Suzanna said...

That's great news! :) I love the post title too.

Jean said...

Thanks, Terri--we need all the prayers you can muster! :)

And, thank you, Suzanna. I've been checking your blog. Reading about how adult Addisonians manage stuff really helps me!